Cancer Alliance

Stakeholder Updates

November 2018 Stakeholder Updates

By 30th November 2018 June 26th, 2019 No Comments

As part of our communications and stakeholder engagement plans, the Cancer Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments across the Alliance.

Clinical Leadership Event – Humber, Coast and Vale Cancer Alliance – 19th October 2018

Over 30 Senior Leaders, Chief Executives, Leads from Cancer Services (Primary and Secondary Care), Chief Operating Officers from across the Humber, Coast and Vale Cancer Alliance area came together at a Clinical Leadership event on 19th October.

The aim of the event was for all Cancer Alliance stakeholders to discuss and work towards, a common ambition of what stakeholders want their Cancer Alliance to do now, and in the medium to long term, to improve cancer services and outcomes for patients. The facilitated sessions identified targets and milestones for the development of the strategic delivery plan.  The event generated debate, enthusiasm and energy for future collaboration across cancer services in the area.  Key actions and areas of focus were identified and will be further developed at a follow-up event on 25th January 2019.  The event will build on the vision and aspirations that stakeholders described during the event.

62 Day Standard and Cancer Transformation Funding

As you will know, the Cancer Alliance was informed by the NHSE that we were being defunded a further £700k for not delivering the 62 day performance target in May, June and July 2018.  We were further required to provide the cancer team with our prioritised projects (excluding the 700k) by September 2018.  At an extra-ordinary meeting of the Cancer Alliance System Board the Board met to consider the options available.  All members’ views were that all of the transformation projects were critical in improving outcomes for patients and we would strive to deliver all of the projects over the coming months.  It was through necessity that the Board had to make very difficult decisions with regard to prioritising spend.

62 Day Recovery Plan

During October 2018 the Cancer Alliance developed its plan to create a 62 day recover plan which was submitted to NHS England.  We are pleased that the alliance has now been allocated £783,000 which has been allocated across our Provider organisations in the Alliance to deliver a number of initiatives that will have an impact on the 62 day performance target.

NHSE Cancer in the Long Term Plan

Cancer Alliances across the Country were asked by NHS England in August 2018, to support the development of a new plan for the next ten years.  This followed the Government’s announcement of a new financial settlement for the NHS.  This was an opportunity for us to gather a wide range of views across the Humber, Coast and Vale Cancer Alliance from our stakeholders.  These views sought to understand what our stakeholders considered to be the priorities for improving cancer care outcomes and care over the next five to ten years.

NHSE also held a workshop with patient and public representatives led by the National Cancer Director, Cally Palmer which our Cancer Alliance was able to be represented at.  This was a further opportunity for the patient voice to be included in the Long Term Plan.

Thank you to all our stakeholders who took the time to complete the survey within the short timescale.  We had an amazing response and the findings from the feedback can be read through the following link. The feedback was sent to NHS England to inform the Long Term Plan for the NHS.

http://humbercoastandvale.org.uk/wp-content/uploads/2018/11/NHS-Long-Term-Plan.pd

Awareness and Early Diagnosis Programme

Lung Health Check Programme

As mentioned previously, the Cancer Alliance System Board carried out a reprioritisation exercise at its September Board and made the decision to delay the start of the Lung Health Check (LHC) Programme until later in 2019.  Although a difficult decision to make, concerns had been expressed about the system preparedness across the Alliance to deal with the additional diagnostic work.  The team continue to work closely with Trusts across the Alliance to ensure the LHC service is included in any future plans and alternative funding sources are being explored.

Bowel Screening and qFIT for Symptomatic Patients

The business case had recommended a small amount of transformation funding be made available to support the roll out of qFIT for patients with low risk symptoms.  However, following the re-prioritisation exercise, the Board made the decision to withdraw the funding.   There has been discussion with colorectal teams at the recent pathways event who have agreed that a FIT Workshop is required to gain understanding of all 3 FIT programmes (Introduction of FIT for the bowel screening programme; qFIT for low risk symptomatic patients and research of FIT for patients with high risk symptoms) within the Alliance footprint in the near future to ensure that planning for colorectal services are fully integrated and standardised across the Alliance.    This will also present the opportunity for shared learning from the pilot recently conducted in Hull and East Riding into the roll out of qFIT.

National Cancer Alliance Early Diagnosis Conference – September 2018

Members of the Humber, Coast and Vale Cancer Alliance attended the National Cancer Alliance Early Diagnosis Event, where the keynote address was given by David Fitzgerald, Programme Director for the NHS Cancer Programme.  The event, which was held at the Etihad Stadium in Manchester, had representation from all 19 Cancer Alliances, and gave Cancer Alliances the opportunity to present and showcase their Early Diagnosis projects.

The Cancer Champion Programme is a Humber, Coast and Vale Cancer Alliance initiative developed to provide training for people to better understand the signs and symptoms of cancer.  The three hour training supports people to be able to talk about the signs and symptoms of cancer with their friends and family.

The team presented the project through a poster display and the Programme Lead delivered a presentation in the’ Improving the Health of Local Populations’ workshop.

The event generated a lot of interest in the Cancer Champion Programme, both at the event and, through social media activity.

Cancer Champion Programme

Sophie Lancaster and Emma Lewin our Volunteer Co-ordinators for the Cancer Champion Programme continue to build resources, training and stakeholder networks across the Alliance. This supports our ambition of achieving 400 cancer champions in 2018-2019.  The Volunteer Co-ordinators delivered the Cancer Champion training to a number of groups and businesses across the Alliance during October and ran two sessions to East Riding CCG staff.

Jane Hawkard, Chief Officer at East Riding CCG, who attended the CCG training, explained “getting people to understand the signs and symptoms of cancer, and encouraging people to visit their GP when they notice something different, is key to them being diagnosed sooner.  Early detection really can save lives and the Cancer Champion training is an opportunity for us all to learn more about the different types of cancer and how we can all encourage our friends and family to be more aware”.

If you would like to know more about the Cancer Champion Programme and request training for your teams or services, please get in touch with Sophie or Emma: eryccg.cancerchampion@nhs.net

Diagnostics Consolidation Programme:

Capacity and Demand modelling

A key theme to emerge from the demand and capacity work included the need for collaborative approaches to workforce planning and future locations/procurement of kit.

The capacity and demand modelling work has now been completed alongside heat maps which show where staffing and equipment resources are located across the patch.

Key messages have been shared with stakeholders including the Humber, Coast and Vale Health & Care Partnership (HCP) Executive.  The work demonstrates the need to extend the diagnostics work programme beyond the existing projects in order to address the gaps between capacity and demand and to develop a sustainable model of service. We are working with colleagues across the HCP to determine the support structure required to progress this work.

Network models

The Radiology procurement went live on 29th October 2018 and the specification, criteria and background documents have all been completed. We have been working with Yorkshire Imaging Collaborative and have now agreed to carry out an aligned procurement as this will give us the best chance of purchasing compatible systems which will enable future collaboration and will also help us to get the best responses for the market. We aim to award the contract by the end of January 2019 and to roll out the solution from April. Work to standardise practice will be taking place in parallel to the procurement process.

The procurement for the digital slide scanners for pathology and the home work stations will also commence shortly. We will be selecting kit on the basis that it enables participation in the wider YH wide digitalisation process.

Treatment and Pathways Programme

To assist and support the planning and implementation of the Colorectal, Lung and Prostate Rapid Diagnostic and Assessment Pathways, stakeholder events were held across each of the pathways.

Colorectal Rapid Diagnostic and Assessment Pathway

Clinical Lead: Chitsabean Praminthra (Chitz), York Teaching Hospital NHS FT

Programme Lead: John Hancock, Humber, Coast and Vale Cancer Alliance

Project Lead: Rachel Iveson, Humber, Coat and Vale Cancer Alliance

The Colorectal Rapid Diagnostic and Assessment Pathway stakeholder event was held on 13th September 2018. The event was well attended and supported by a number of clinical and non-clinical staff from across primary and secondary care across the Alliance.

Presentations included optimal pathway, IST pathway analyser tool by NHSI, Accelerate Co-ordinate Evaluate (ACE) case studies, benchmarking exercise key feedback, best practice within the Alliance – rollout of FIT for symptomatic patients in primary care findings of pilot across Hull and the East Riding of Yorkshire CCGs, and straight to test pilot undertaken in North Lincolnshire Hospitals Trust.  Workshops held for each of the three acute trusts to undertake action planning using benchmarking information to meet 62 day target.

A benchmarking exercise was undertaken across each acute trust to map current pathways in place against optimal pathway for all three trusts for colorectal tumour sites.

The NHS Improvement pathway analyser tool has been implemented in North Lincolnshire and Goole Hospitals Trust, York & Scarborough NHS FT, and currently being undertaken in Hull and East Yorkshire Hospitals NHS Trust.

A benchmarking exercise has been undertaken across each acute trust to map current pathways in place against optimal pathway for lung and colorectal tumour sites

Action plans were drafted during the workshop with MDT leads and cancer mangers from each of the hospital trusts agreeing the accuracy of the content following the event.

Slides from the event can be found here: http://humbercoastandvale.org.uk/how/better-cancer-care/workstreams/

A follow-up event to progress the implementation of the action plans has been arranged on 11th December, 12.30pm top 4pm, Mercure Hotel, Willerby.

Lung Rapid Diagnostic and Assessment Pathway

Clinical Leads: Stuart Baugh, North Lincolnshire & Goole NHS Trust and: Gavin Anderson, Hull and East Yorkshire NHS Trust

Programme Lead: John Hancock and Trish Rawnsley, Humber, Coast and Vale Cancer Alliance

The Lung Rapid Diagnostic and Assessment Pathway stakeholder event was held on 14th September and again, as with the Colorectal event, was attended and represented by a number of clinical and non-clinical staff from across primary and secondary care across the Alliance.  Presentations included optimal pathway, IST pathway analyser tool by NHS Improvement, Accelerate, Co-ordinate Evaluate (ACE) case studies, a benchmarking exercise key feedback, best practice from across the Alliance and the findings of the radiology audit at HEY.

Workshops were held for each of the three acute trusts to undertake action planning using benchmarking information to meet 62 day target.

A benchmarking exercise was undertaken across each acute trust to map current pathways in place against optimal pathway for all three trusts for lung tumour sites.

The NHS Improvement pathway analyser tool has been implemented in North Lincolnshire and Goole Hospitals NHS FT and York & Scarborough NHS FT, and is currently being undertaken in Hull and East Yorkshire Hospitals NHS Trust.

Action plans were drafted during the workshop with MDT leads and cancer mangers from each of the hospital trusts agreeing the accuracy of the content following the event.

Slides from the event can be found here: http://humbercoastandvale.org.uk/how/better-cancer-care/workstreams/

Prostate Rapid Diagnostic and Assessment Pathway

Clinical Lead – Matt Simms, Hull & East Yorkshire NHS Trust

Programme Lead – John Hancock, Humber, Coast and Vale Cancer Alliance

The Prostate Rapid Diagnostic and Assessment Pathway stakeholder event was held on 12th October with a smaller group of clinical staff from across the Alliance.  The event focused on agreeing a way forward for the development of a rapid pathway.  A gap analysis is currently being undertaken across all three acute trusts.

A follow-up event has been scheduled for 25th January 2019.

Slides from the event can be found here: http://humbercoastandvale.org.uk/how/better-cancer-care/workstreams/

Patient and Public Involvement Event

A patient and carer stakeholder event to inform the pathway development is being planned for early February 2019.

Living With and Beyond Cancer programme

The Living With and Beyond Cancer programme team is now in place with a Programme  Manager (Alison Cockerill) and Delivery Manager (Amina Bristow) funded by Macmillan Cancer Support now in post.

Work is underway to update the programme plan with stakeholders and patients / carers to ensure that the national targets and local ambitions can be attained.

The three hospital trusts were awarded funding through the transformation funding bid for one year for three x band four posts and one x band seven post. The purpose of these roles will be to assist with the implementation and embedding of the recovery package and risk stratification for target tumour sites.  This will pave the way for the achievement of the national ambition of every person affected by cancer being able to access recovery package by 2020. Recruitment has been underway and post-holders are now in post or recruitment has commenced across all hospital trusts.

A resource pack, to support GPs in undertaking high quality Cancer Care Reviews, (CCR) have been sent to GP practices.  The Cancer Care Review document provides guidance on how to carry out a CCR and examples of templates.

http://humbercoastandvale.org.uk/wp-content/uploads/2018/04/Humber-Coast-and-Vale-Cancer-Care-review-pack.pdf

For more information, contact Alison Cockerill, Macmillan Living With and Beyond Cancer Programme Manager – Alison.cockerill@nhs.net  tel. 07718 192254

NHS England has published ‘The Role of Allied Health Professionals in supporting people to live well with and beyond cancer’. You can access a copy here:

https://www.england.nhs.uk/wp-content/uploads/2018/10/quick-guide-ahp-cancer.pdf

Data/Information:

A copy of the HCV cancer alliance dashboard for the period September 2017 to August 2018 is available by contacting us at comms.hcvcanceralliance@nhs.net

Communications and Engagement

The draft HCV Cancer Alliance Communications and Engagement strategy was presented to the Cancer Alliance System Board at its September 2018 meeting. Stakeholders across the Alliance were invited to give feedback by 15th October on the Strategy.  The strategy will now go to the Cancer Alliance System Board 0n 12th November 2018.

The Communications and Engagement Steering group, with key stakeholders from across the Alliance area has now had its first meeting and will be responsible for overseeing the implementation of the Communications and Engagement strategy.  The Strategy and action plan will be developed to provide the detail of how we will engage and communicate with patients, public, staff and other key stakeholders.

Website – Humber, Coast and Vale Cancer Alliance

We are pleased to announce that Macmillan Cancer Support has agreed to fund the development of a Cancer Alliance website.  Procurement of a provider has commenced and a task and finish group will be set up to develop the new website.  Anyone who would be willing to be involved in supporting this development, please get in touch.

For further information please get in touch at comms.hcvcanceralliance@nhs.net

Encouraging more feedback from cancer patients from BME backgrounds

During the autumn, NHS England’s Insight & Feedback team will be working with partners to highlight the importance of hearing ALL voices in feedback about cancer services. Posters, messaging and web resources are being developed with links to a web page that sets out the different ways that people who do not identify as ‘white British’ can tell services what worked well and what could be improved, so that future patients will benefit.

More information and links to downloads will be available soon. Anyone who feels they can help to spread the word during October and November – coinciding with the distribution of the NCPES to thousands of patients across the country – are asked to contact Insight and Feedback Communications Manager, Gillian Radcliffe – gillian.radcliffe@nhs.net

National Cancer Patient Experience Survey 2017

On 28th September, NHS England published the results of the National Cancer Patient Experience survey for 2017. The annual survey, first undertaken in 2010 has been designed to monitor national progress on cancer care; to provide information to drive local quality improvements; to assist commissioners and providers of cancers care; and to inform the work of charities and stakeholder groups supporting cancer patients.

The reports for the CCGs and Hospital Trusts across the Humber, Coast and Vale Cancer Alliance can be accessed here:  https://humbercoastandvale.org.uk/how/better-cancer-care/

Other updates/events:

HSJ’s inaugural National Cancer Forum – 12th March 2019

In 2015, NHS England embarked on a five-year cancer strategy to achieve world-class cancer outcomes. Now, as one of the highest profile of NHS England’s clinical priorities, cancer will feature significantly in the NHS ten-year plan due in November.

What does this mean for you?
What is your role in making the ten-year plan a reality?
What does the future of cancer care look like?

HSJ’s inaugural National Cancer Forum will answer these questions and others at Park Plaza Victoria on 12 March 2019. This free to attend forum will bring together core stakeholders from across the cancer community – from public bodies, cancer alliances and individual trusts. REGISTER YOUR INTEREST

The programme will be available shortly, with key themes including:

Making the ten-year plan a reality

The future of the cancer workforce

The potential of AI

Genomics and personalised medicine

The vital role of primary and community care

Meaningful patient involvement

Cancer waiting time standards

This is a unique opportunity to discuss national cancer policy with peers from across England and how to deliver it at a local level.

The target audience for the event:

  • National leaders from public bodies, including NHSE, NHSI, Health Education and PHE
  • Senior representatives from Cancer Alliances
  • Project leads for cancer at STP/Integrated Care System level
  • Specialist cancer trusts
  • Consultants, clinical directors, lead oncologists, chief pharmacists, heads of radiology, lead cancer nurses, specialist cancer nurses and general manager

Please contact us if you no longer wish to receive this monthly communication, if you have received this bulletin and are not on our distribution list and would like to be, or if there is anything you would like to include in future monthly updates.  Our email is comms.hcvcanceralliance@nhs.net

Coaching/mentoring offer – for people representing patient voice in the NHS 

NHS England has developed a coaching/mentoring development opportunity for Patient and Public Voice (PPV) partners. We are offering places to PPV partners who are currently volunteering with NHS England or are supporting transformation through their volunteering with Clinical Commissioning groups (CCGs), Sustainability and Transformation Partnerships (STPs) or Integrated Care Systems (ICSs) on a regular basis. The coaching/mentoring will be provided by accredited employee coach/mentors who also coach or mentor NHS England employees.

This development opportunity is aimed at strengthening patient voice. Initially we have 20 places available. This opportunity does not attract any type of payment. Expenses incurred will be covered as per our expenses guidance and paid by the Public Participation team at NHS England; these are expected to be minimal as the majority of the sessions will be conducted by telephone/skype wherever possible.

Criteria

  • We would anticipate that you would have been volunteering for a minimum of 6 months representing patient voice (less will be considered if you feel you have had enough time in the role to have something you wish to receive coaching/mentoring on)
  • We will consider location as part of the criteria to get a spread across the country and to fit with coach/mentor availability
  • You will need to have a specific issue related to your volunteering role which you would like to work through with your coach/mentor. This should be something that will help you increase your effectiveness in representing patient voice (this will remain confidential between yourself and your coach/mentor)

More information and how to apply

If you are interested please send an e mail to england.ppve-learning@nhs.net requesting an application form and information pack for the coaching/mentoring offer. As part of your application you will be asked to include details of your sponsor and a supporting statement.  The closing date for receipt of completed application forms for this year will be 15th November 2018.

Angela Medd, Patient and Public Partnerships Account Manager

NHS England, E: angela.medd@nhs.net  M: 07876 851750

 

If you no longer wish to receive this update, please email us at comms.hcvcanceralliance@nhs.net and we will remove your contact details.

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