Get Involved

We are committed to ensuring that the voices of people affected by cancer are at the heart of service improvements. So if you are a patient, family member, carer or friend, we would love to hear from you.

By sharing your experiences and opinions, you can help make sure that the care provided is what people really need.

There are lots of different ways to get involved, and you can give as much or as little time as you would like. Whether you are taking surveys, reviewing leaflets or acting as a patient representative at Cancer Alliance meetings, your actions will make a big difference to the lives of those living with and beyond cancer.

See below for some of the ways you can currently get involved:

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Current opportunities to get involved:

Graphic to advertise the national Cancer Patient Experience Survey (CPES). It shows a person entering a CT scanner while a nurse in scrubs stands to their left and operates the machine. The words 'Help us to make meaningful changes in cancer services.'

Cancer Patient Experience Survey

At the NHS, we want our patients to have the best experience possible and having continuous patient feedback is crucial in helping us deliver what patients want and need.

The national Cancer Patient Experience Survey (CPES) asks for feedback from cancer patients (16 years and over*), to inform and improve local cancer services across England. Those who were treated for cancer as an inpatient or day case, and left hospital in April, May or June 2021, will be invited to take part in the survey.

The NHS, including commissioners and providers, national policymakers and cancer charities use the results to understand what is working well and which areas need improvement. The results enable them to identify national and local priorities and work with patients and partners to deliver change.

This year the Cancer Patient Experience Survey (CPES) questionnaire has been redesigned, guided by the CPES Advisory Group, to reflect developments in cancer care and treatment, and national policy.

The results of the survey will be available in Summer 2022. For more information on the survey and how to access help and
support in completing it, please visit

*A new survey has been launched for those aged 16 and under, go to

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Support Group Directory

Do you benefit from being part of a cancer support group in the Humber, Coast and Vale region? Then we would love to hear from you!

The Cancer Alliance Support Group Directory is an online resource that aims to help people find cancer-related support in the Humber, Coast and Vale region. To register your group or organisation to the directory, please click here or email Karen Lindley, Macmillan Living with and Beyond Cancer Project Officer at

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Quality of Life Local Champions

Humber, Coast and Vale Cancer Alliance want to encourage as many people as possible to complete the new NHS Cancer Quality of Life survey so that the information collected fully represents our cancer population.

In order to do that, we looking for people to act as ‘local champions’ and help promote the survey locally. This role profile sets out the purpose of local champions, ways to promote the survey and how we will support local champions to deliver local awareness-raising activity.

Please share this role profile with anybody that might be interested in becoming a local champion for the Cancer Quality of Life survey and if you or someone you know would like to get involved, please contact