Cancer Alliance

Category

Stakeholder Updates

A headshot of Dr Nigel Wells, Clinical Lead for the Humber, Coast and Vale Health and Care Partnership. He's smiling and wearing a black suit jacket over a wh

Health and Care Partnership appeals for public support to help ensure services resume safely and promptly

By | Stakeholder Updates | No Comments

NHS and council organisations in Humber, Coast and Vale are appealing for the public’s help as they work together to increase the availability of health and care services, which were restricted, relocated or paused during the coronavirus outbreak.

At the outset of the pandemic, health and care professionals including hospital teams, GPs, health visitors and social care staff responded quickly by changing the way they worked.

While some services are returning to how they were before, many of the changes made in response to the pandemic need to remain to maintain patient and staff safety and ensure services are prepared to handle any future increases in Covid-19 cases.

The public can play a pivotal role in helping to ensure that health and care services can resume safely and promptly. You can support your local NHS by:

  • Attending any appointments booked on your behalf
  • Consulting NHS 111 first if you are unsure which service you need
  • Only using A&E for emergencies
  • Being prepared to travel to a different location for appointments or treatment
  • Helping family and friends to get online so they can access online services if required

A headshot of Dr Nigel Wells, Clinical Lead for the Humber, Coast and Vale Health and Care Partnership. He's smiling and wearing a black suit jacket over a whDr Nigel Wells, Clinical Lead for the Humber, Coast and Vale Health and Care Partnership, said: “We have to make some tough decisions about how we bring back services over the coming months. These decisions are being taken by the doctors and nurses in our hospitals and in the community. Our main concern is and always will be everyone’s safety.

“Many of our staff have been asked to work in new roles and locations; equipment has been moved to where it is most needed to care for people; we have fewer beds in our hospital wards as we have had to move them further apart which takes up more space; and we have to wait longer between procedures in our operating theatres to allow for deep cleaning and for the air to change.

“This all means that while some services are being restored to how they were before the outbreak, we can’t switch them all back on straight away and we hope people can understand the reasons why and bear with us.

“We are thankful for your patience as we resume services safely as quickly as possible and we need your help to do this. If you are asked to come to hospital or your GP practice for treatment, please do everything you can to keep your appointment so that we can see as many people as possible within the current constraints.”

Press image of Professor Stephen Eames CBE, Independent Chair Humber Coast & Vale Integrated Care System.Professor Stephen Eames CBE, System Lead and Independent Chair for the Humber, Coast and Vale Health and Care Partnership, said: “We’d like to thank local people for their patience, understanding and visible support over recent weeks and months. We had to make some immediate decisions for the safety and wellbeing of our staff, patients and their families and we know that, for some, these service changes have caused anxiety and concern.

“As we continue to work differently over the coming weeks and months, we ask for your continued support and patience. We may ask you to travel to a different location, your appointment might be conducted over the phone or online or your care may be provided in a different way than you are used to.”

Cancer Alliance News – January 2020

By | Cancer Alliance, Stakeholder Updates

Welcome to the first Humber, Coast and Vale Cancer Alliance Quarterly Newsletter.

Introduced by Phil Mettam, Executive Chair of the Cancer Alliance, the first edition focuses on work taking place across the Alliance, including the introduction of Digital Pathology, launch of Lung Health Checks in Hull and Treatment Summaries at York Teaching Hospital NHS Foundation Trust.

In this edition, we meet two new Cancer Alliance Project Officers who are helping to increase cancer awareness and uptake of screening across our area and learn more about 5k Your Way, a national initiative that is helping those affected by cancer get active and build friendships.

Click here to view the Humber, Coast and Vale Cancer Alliance Newsletter  – January 2020

If you would like to feature in our next edition, please email comms.hcvcanceralliance@nhs.net

May 2019 Stakeholder Updates

By | Stakeholder Updates | No Comments

As part of our communications and stakeholder engagement plans, the Cancer Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments across the Alliance.

Cancer Alliance System Board – 13th May 2019
The Board received a revised performance report focussing on 28 day and 62 day performance as these standards have been prioritised at local, regional and national levels. Increasing attention is, and will continue to be given to demand and performance over time rather than a consecutive month comparison).

Whilst 62 Day RTT performance across HCVCA does not meet the required national 85% standard, the performance differential to that of other Alliances is narrowing. The Alliance providers have in place a wide range of initiatives to improve performance against this standard.

Lung Health Check (LHC)
As previously reported in February, NHS England announced that the Cancer Alliance and NHS Hull CCG had been successful in securing Hull as one of the ten sites across England that has been chosen to deliver the first phase of the NHS LHC. The targeted screening will help improve survival rates by going to areas with the highest death rates from lung cancer.

A LHC Delivery Group has been set-up to oversee the development and roll-out of the LCH across Hull with five working groups established to implement the required products needed to launch the LHC.

Working Group 1: Engagement and Communication with communities and GP Practices
Leads: Emma Shakeshaft Communications & Engagement Lead, Hull CCG and Kay Gamble, Communications & Engagement Lead, CA

Working Group 2: Primary care engagement, identify and invite eligible participants, secure facilities and site to deliver LHCs
Leads: Dr Vince Rawcliffe, GP Board Member, Hull CCG
Dr James Crick, Consultant in Public Health Medicine and Associate Medical Director

Working Group 3: Undertaking LHC Assessments: staffing, operational policy and protocols
Lead: Jo Thompson, Responsible Assessor for LHC Programme, and Respiratory Nurse,
Victoria Sharman, Matron, HUTH

Working Group 4: Secondary Care Investigations & Treatment for LHC participants
Lead: Dr Gavin Anderson, Responsible Clinician for LHC Programme and Clinical Lead for Lung
Cancer Services, HUTH or nominee tbc

Working Group 5: Data & Information Management
Lead: Dr Stuart Baugh, Clinical Director for LHC Programme and Consultant in Respiratory
Medicine, NLAG.

Lung Cancer Services
Aligned to this, the Board also received an update on the work in reviewing Lung Cancer Services and the development of the Rapid Access to Pulmonary Investigation Day pathway (RAPID) to improve patient experience, reduce variation, standardise diagnostic evaluation and eliminate medically unjustifiable delays.

2019/2020 HCVCA Funding Allocation and 2019/2020 Objectives
The Board approved the 2019/2020 Cancer Alliance ‘Plan on a Page’ which provided the details of how CAs had allocated funding locally to ensure delivery of national and local
priorities. HCV CA was allocated £4,355,000 for 19/20 delivery which included £1,429,000 for the delivery of the Lung Health Checks in Hull.

The CA Objectives were also approved at the Board and will now going forward to be discussed further as part of wider Health & Care Partnership event on 11th June.

The NHS Long Term Plan
As briefly mentioned above, Humber, Coast and Vale Health and Care Partnership are holding a HCV Partnership Leaders event on Tuesday 11th June 2019, from 1pm to 5pm at the Lakeside Conference Centre, Sand Hutton, York. The Cancer Alliance and other work programmes will present their long term objectives to senior leaders and other key stakeholders at the event.

Cancer Screening Programmes
Sir Mike Richards has now published his Interim Review of national cancer screening programmes in England

Sir Mike’s interim report, published Friday 24th May, calls for practical measures to be used across the NHS to make screening more convenient and reverse the long-standing decline in the proportion of people being tested. “The NHS should roll out online booking, out of hours appointments and text reminders to boost the uptake of breast, cervical and other screening services”, leading expert Professor Sir Mike Richards says.

Colorectal Rapid Pathway Work Programme
The Humber, Coast and Vale Cancer Alliance held a FIT workshop for clinicians and managers across the locality on the 28.2.19; this was a success with high level plans agreed for FIT roll out for low risk symptomatic patients (VoY/ SR and NL/ NEL CCGs). All Trusts aim to have implemented FIT for low risk symptomatic patients in 2019.

In addition, HUTH is currently evaluating a pilot regarding local implementation of FIT across
ERY CCG and Hull CCG and in York Dr James Turvil is undertaking research regarding the
application of FIT in high risk patients.

A further colorectal business meeting has been booked for the 20th June 2019. The agenda will cover updated Colorectal Rapid Pathway (including Straight to Test), FIT implementation (Low Risk Systematic Patients), Inter-Provider Transfers guidelines for colorectal cancer patients, Implementation of MDT guidance/ Acute Service Provision and refresh HCV colorectal timed pathways. Providers and HCVCA are making use of ‘shadow’ 28 day referral to diagnosis data as a proxy measure of implementation of the colorectal rapid pathway.

A new project manager to support the delivery of the Colorectal Rapid Pathway work has commenced in post and can be contacted on amina.bristow@nhs.net

Prostate Rapid Diagnostic and Assessment Pathway
Work has commenced on the 2018/19 progress report and gap analysis work is underway.
Following the Prostate Focus Group in February colleagues have been discussing adoption of the new access criteria for MRI/CT/Biopsy with their colleagues within each trust, this has now broadly been agreed and with some further work aims to implement new criteria in June.

At the Business Meeting in May IPT protocols across the patch were reviewed and the protocol for Prostate agreed. Also discussed at the meeting was the development of Standards of Care for MDT processes in line with national guidelines. Meetings are taking place across the patch to agree criteria and format of process. A new Project Manager supporting work on the Prostate Rapid Diagnostic and Assessment Pathway has commenced in post and can be contacted on laura.tattersall@nhs.net

Diagnostics
Procurement of the Radiology workflow solution has been completed and the technical roll out has commenced with an ambition to ‘go live’ in the autumn, commencing with the priority pathways: Lung, Colorectal and Prostate. In the meantime, process mapping work is underway with a view to identifying efficiency savings that can be realised through use of the system.

The procurement of digital slide scanners has also been completed and a plan is in place to address training requirements. The ambition is to commence digital reporting on the priority pathways by the autumn.

A HCV wide endoscopy group has now been formed, along with a decontamination sub group. Potential for efficiencies in the procurement of decontamination equipment and the associated maintenance contracts has been identified and is being explored. Right Care data and examples of best practice from other parts of the country are being used to inform a 4 programme of demand management, workforce development and productivity gains, with a further clinical meeting being planned for July to reflect on possibilities.

Work continues on the development and prioritisation of joint asset registers for Radiology and Endoscopy. This will support recommendations about future strategic investment of resources as well as identifying possible joint procurement opportunities.

Workforce planning is crucial to the future of Diagnostics and we are working across the HCP and closely with HEE to identify innovative approaches to bridge current and future gaps in workforce availability. A piece of work to identify potential for extended scope practitioners has also commenced.

A diagnostics end of year report setting out the key achievements in 18/19 and the ambitions for 19/20 has been produced and can be accessed by contacting us comms.hcvcanceralliance@nhs.net

A new Project Manager for Diagnostics commenced in post in April and can be contacted on laura.tattersall@nhs.net

Living With and Beyond Cancer April update
All three hospital trusts are already offering elements of the Living With and Beyond Cancer Programme Recovery Package to some patients, with plans to extend this to others.
However in order to identify gaps and enable them to focus on areas where more work is required, the Living With and Beyond Cancer team have been working with the hospital trusts to ensure that a baseline is established for the numbers of patients receiving different aspects of the Recovery Package (eHolistic Needs Assessment and Care Plan, Treatment Summary, access to a Health and Well-being event, intervention or information) and a high quality Cancer Care Review in their GP practice. It will help identify gaps in provision in different tumours as they work towards the goal outlined in the NHS Long Term Plan of “by 2021, where appropriate every person diagnosed with cancer will have access to personalised care, including needs assessment, a care plan and health and wellbeing information and support.”

The NHS Long Term plan also set a target that after treatment, patients will move on to a risk stratified follow-up pathway that suits their needs, and ensures they can get rapid access to clinical support if they are worried that their cancer may have recurred. For breast cancer this should be established by 2019, for prostate and colorectal cancers in 2020 and other cancers where clinically appropriate by 2023. The trusts are making progress on developing and implementing their risk stratified pathways. York introduced their risk stratified pathway for newly diagnosed breast cancer patients from January 2019 and have a well-established risk stratified remote surveillance pathway for colorectal cancer. Hull also introduced their risk stratified pathway for colorectal and prostate cancers in January and NLAG have established and implemented a pathway for colorectal cancer.

Other news
The Living With and Beyond Cancer Programme Board which meets bi-monthly has welcomed two new patient representatives in 2019 to its meetings. Zoe Bounds from York and Clare Davis-Eaton from N.E.Lincs provide valuable insight into the views of service users. A meeting was held with representatives of Breast Cancer Now to discuss their manifesto for the provision of specialist support for patients with metastatic breast cancer. This was also discussed at the Living With and Beyond Cancer Board. More information about the manifesto can be found at https://www.breastcancercare.org.uk/get-involved/campaignus/secondary
Welcome to:
Laura Tattersall, Project Delivery Manager to the Diagnostics work-stream and Prostate rapid diagnostic and assessment pathway
Jen Hall, Macmillan Patient and Public Engagement Officer, Communications and Engagement Team
Tracey Emmerson, Project Support Assistant
Vicky Walpole, Project Manager, Lung Health Check Programme (3 months)
Martyn Slingsby, Programme Manager

Goodbye to:
Keith Kocinski, Data and Information lead who has now retired. Keith was instrumental in the development of the cancer dashboards and performance reporting to name just a few
and we thank Keith for all the expertise that he brought to the Cancer Alliance. He will be missed but we wish him well in his retirement

In light of the 2019/2020 programme of work and new arrivals to the team, we are reviewing the Programme team structure and will update you shortly with confirmed changes.

Meanwhile for further information please get in touch with us at: comms.hcvcanceralliance@nhs.net

February 2019 Stakeholder Updates

By | Stakeholder Updates | No Comments

As part of our communications and stakeholder engagement plans, the Humber, Coast and Vale Cancer Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments across the Alliance.

NHS Lung Health Checks
On 8th February NHS England announced that Cancer Alliance had been successful in securing Hull as one of the 10 sites across England that has been chosen to deliver the first phase of the NHS Lung Health Checks. NHS Hull CCG is one of those CCGs chosen to roll out the NHS Lung Health Check. The targeted screening will help improve survival rates by going to areas with the highest death rates from lung cancer. As we know, Hull has one of the highest death rates from lung cancer.

Dr James Crick, Consultant in Public Health Medicine and Associate Medical Director at NHS Hull CCG, said: “Humber, Coast and Vale Cancer Alliance and NHS Hull CCG welcome the announcement that Hull is one of 10 initial sites, across the UK, chosen to be part of the first phase of the NHS Lung Health Check rollout. The CCG and the Alliance are working with Hull University Teaching Hospitals NHS Trust and local healthcare partners to develop plans for the implementation of the lung health check service in Hull, which will include a mobile lung cancer scanning truck.

“We know that detecting health problems earlier makes the chance of successful treatment much greater, and we look forward to working in partnership to deliver a service that is going to save lives”

Dr Crick was interviewed on BBC Radio Humberside and you can listen to his interview here:
https://www.bbc.co.uk/programmes/p06yz05l

The NHS Long Term plan sets out an ambition that 55,000 more people will survive their cancer. To achieve this, the plan also includes an ambition to increase the number of cancers diagnosed at stages one and two from half to three-quarters of cancer patients. Based on the schemes in Manchester and Liverpool, the project will not just identify more cancers quickly but pick up a range of other health conditions, including chronic obstructive pulmonary disease (COPD).

The scheme means people aged 55-74 who have been identified as being at increased risk of lung cancer will be invited for a lung health check and be offered a chest scan if appropriate, through a mobile unit. The new projects will last initially for four years and NHS England will evaluate the results with possible further roll-out. A second phase will see this service roll-out in other areas of the Humber, Coast and Vale Cancer Alliance. A first stakeholder event is being planned for April – the date will be confirmed shortly.

Clinical leadership event – Humber, Coast and Vale Cancer Alliance Senior Leaders from across the Humber, Coast and Vale Cancer Alliance area came together at the second clinical leadership event on 1st February.

The event was a chance for senior clinicians from across the Cancer Alliance to showcase the work that is ongoing. A showcase presentation, on the research project, Fast Track FIT – Diagnostic Accuracy Study was given by Dr James Turvill, Consultant Gastroenterologist from York Teaching Hospital NHS Foundation Trust.

Dr Gavin Anderson, Lung Clinical Lead and Mr Matt Simms, Prostate Clinic Lead, both presented the Lung Pathway and Prostate Pathway development work; a priority for the Cancer Alliance. Their visions will be built on later this week, on Wednesday 6th February, when the Alliance hosts a patient and carer event. This event aims to get a better understanding of the patients’ experience of the cancer pathways.

In the final session of the Clinical Leadership Event, Lucy Turner, Programme Director, took the opportunity to present the vision and draft Long Term Plan objectives for the Cancer Alliance in 2019/20, followed by a collaborative breakout session for stakeholders to review and build on the vision and objectives set out.

National cancer team’s visit to Humber, Coast and Vale Cancer Alliance
David Fitzgerald met with staff from across the Cancer Alliance when he visited the area on 5th February at The Queens Centre at Castle Hill Hospital. Presentations from senior clinicians and leaders from the Cancer Alliance were given on our vision and objectives for 19/20; 62-day recovery plan; diagnostics; lung and oncology transformational service redesign.

Following the announcement of £88.5m capital funding, the Alliance asked David for National Team support to overcome the lengthy capital clearances and business case submissions. Workforce and recruitment to key positions was also highlighted as an area where the Cancer Alliance would welcome National Team support.

David explained that the National Team is looking at how transformation funding across all Cancer Alliances is allocated with a move from a bidding process to a population-based allocation to reflect deprivation indices. If agreed, this would significantly increase resource for the Cancer Alliance.

The visit finished with a tour of the Queens Centre for Oncology and Haematology.

Oncology Services at York Teaching Hospital NHS Foundation Trust
As of 5th March 2019, the breast oncology outpatient service at Scarborough Hospital will no longer be provided by Hull and East Yorkshire Hospitals NHS Trust, and all patients will instead be seen as an outpatient at York Hospital.

This is a short to medium-term measure which is needed due to issues with medical staffing and increased patient need for access to oncology services. Chemotherapy will continue to be delivered at Scarborough Hospital.

Oncology services have been delivered by Hull and East Yorkshire Hospital NHS Trust for over 10 years. However, due to medical staffing constraints, in recent months the service at Hull is struggling to be maintained. This may have an impact on waiting times and, potentially, clinical outcomes due to delays in reviews and treatments.

There is a national shortage of oncologists and also oncology trainees. The service has advertised numerous times over the past 18 months to recruit both substantive and locum staff with little success.

As you may also already be aware, referrals to Scarborough and York oncology services have increased each year for more than a decade. This is having a significant impact on the demand for the service.

York Hospital is currently in the process of contacting patients who have been referred to the service to make them aware of the changes.

Patients with a current open referral will be contacted by phone by York Trust staff and it will be explained to them that their oncologist will no longer be providing clinics in Scarborough. If they wish to stay under the care of this consultant, they will be given the option to transfer their care to Hull and continue with the same consultant. This will however mean that the rest of their care and treatment would also transfer to Hull (including chemotherapy).

The alternative is that they will be given an appointment at York Hospital. This would mean that their oncology outpatient appointments would take place in York, however they would be able to have chemotherapy in Scarborough or Bridlington. The initial phone call will be followed up with a letter.

For new patients and those referred for appointments from 5 March onwards, the referral pathway remains the same as now. Patients needing a referral into the two week fast track breast cancer pathway can be referred to either York Trust (with diagnostic appointments taking place at York Hospital) or to Hull Trust, as is currently the case, taking into consideration patient choice.

This is a short to medium-term measure which is necessary to continue to deliver a service that meets expected levels of quality and safety.

Our priority is to ensure that patients who need to be seen by a highly skilled specialist can do so as quickly as possible, and the only way to do this within the current resources is to provide the service from a single location.

Diagnostics
Contracts are currently being signed following the procurement of the radiology workflow solution. This is a five-year contract with option to extend for a further five years, one year at a time and an option for Yorkshire Imaging Collaborative to join the contract at a later date if this suits the needs of their stakeholders.

Good progress is being made on the joint asset register for diagnostics with plans for an initial, collaborative exercise planned in early April to support recommendations about strategic investment in replacement radiology kit.

Work is currently being worked up to move from a radiology outsourcing network to develop an insourcing network which aims to make best use of the available resources across the patch and reduce cost and reliance on outsourcing over time.

The Board Assurance Framework has been circulated to key stakeholders for input. The framework will create a combined list of risks that can be evaluated and used to identify priority actions using a collaborative region wide, strategic approach. This will be discussed further at the Endoscopy Working Group on 5th March and the Radiology Group on 7th March and a future Pathology Group and at the Strategic Diagnostics board on 14 th March. The next Strategic Diagnostic Board is being held on 14th March 2019.

Treatment and Pathways

To assist and support the planning and implementation of the Colorectal, Lung and Prostate Rapid Diagnostic and Assessment Pathways, stakeholder events continue to be held across each of the pathways.

The Cancer Alliance held a Colorectal Cancer Event on 28th February focusing on implementation of Faecal Immunochemical Testing (FIT). Participants heard from NHS England about the new FIT screening test being implemented from April, about the use of FIT in symptomatic patients presenting in primary care, and early results of an economic analysis of the weight loss pathway. The event was well attended by staff from primary and secondary care and evaluated well. This is part of the work we are undertaking to agree pathways across the Alliance for low risk and high risk patients. Copies of the presentations are available here

Lung Rapid Diagnostic and Assessment Pathway
Action plans have been drawn up and agreed and a further business meeting was held on 21st January to update and discuss issues affecting all organisations across the Alliance, including workforce shortages and diagnostics. A further education event is being planned for 30th April 2019. Slides from all the previous event can be found here

Prostate Rapid Diagnostic and Assessment Pathway
The next Prostate workshop is currently being planned and a date will be circulated shortly.

Prostate Focus Group
Focus groups were held on 6th February at the County Park Inn, Hessle, where a number of patients and others affected by prostate cancer came together to talk about their experience of prostate cancer from their signs and symptoms, presenting at primary care through diagnostics, treatment to living with and beyond cancer. The event was incredibly well attended and the findings and next steps from the event will be taken forward with those that attended with future co-production events being arranged. The findings from the event will be used to inform the pathway work currently being undertaken. Focus groups sessions are being planned for those affected by colorectal cancer in the near future, to inform the colorectal pathway.

Living with and beyond cancer
Progress is being made with the introduction of risk stratified pathways with all new patients with colorectal cancer beginning to be risk stratified at Northern Lincolnshire and Goole NHS Foundation Trust. Hull and East Yorkshire Hospitals NHS Trust have begun risk stratification for colorectal and prostate cancer (where patients received radical radiotherapy). Patients with breast cancer are also risk stratified. At York Teaching Hospital NHS Foundation Trust, patients diagnosed with breast cancer and colorectal cancer are risk stratified.

Upcoming Awareness Days/Campaigns – March 2019
Ovarian Cancer Awareness month
Prostate Cancer Awareness month
Cervical Cancer Screening campaign
No Smoking Day – 13th March 2019

https://campaignresources.phe.gov.uk/resources

Twitter @HCVCancer

A reminder that Humber, Coast and Vale Cancer Alliance uses twitter and our handle is @HCVCancer Please do send content or tag us in to anything you would like us to share or make us aware of.

If there is anything you would like to include in future monthly updates, please email us at comms.hcvcanceralliance@nhs.net

January 2019 Stakeholder Updates

By | Stakeholder Updates

As part of our communications and stakeholder engagement plans, the Cancer Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments across the Alliance.

Welcome to our new Programme Director

Welcome to our new Humber, Coast and Vale Cancer Alliance Programme Director, Lucy Turner.

Lucy joins us on secondment from Leeds Teaching Hospitals NHS Trust, where she was General Manager for the Oncology Clinical Service Unit for two years. Prior to that Lucy was at York Teaching Hospital NHS Foundation Trust for over 12 years in a variety of operational and corporate roles.

Lucy is really looking forward to getting out and about and meeting colleagues across the Cancer Alliance over the coming weeks. Lucy can be contacted by email lucy.turner13@nhs.net or @HCVCancer

Clinical Leadership Event – Humber, Coast and Vale Cancer Alliance –1st February 2019

The second Clinical Leadership Event will take place on 1st February 2019, bringing together Senior Leaders, Chief Executives, Leads from Cancer Services (Primary and Secondary Care), Chief Operating Officers from across the Humber, Coast and Vale Cancer Alliance area.
The event is for Cancer Alliance stakeholders to take forward a common ambition of what stakeholders want their Cancer Alliance to do now, and in the medium to long term, to improve cancer services and outcomes for patients and take forward The Long Term Plan for the NHS
released on 7th January 2019. In August 2018, Cancer Alliances across the Country were asked by NHS England to support the development of a new plan for the next ten years. The Long Term Plan for the NHS was released on 7th January and has been circulated. Some of the highlights for us, as a Cancer Alliance, include:

  • Diagnose 75% of cancers at stage 1 or 2 by 2028, including lowering the age for bowel screening, rolling out HPV primary screening and extending lung health checks.
  • Roll out new Rapid Diagnostic Centres across the country so patients displaying symptoms of Cancer can be assessed and diagnosed in as little as a day.
  • Introduce a new, faster diagnosis standard which will ensure that patients receive a definitive diagnosis or ruling out of cancer within 28 days.
  • Deliver personalised cancer care for all, giving patients more say over the care they
    receive.
  • Secure our place at the cutting edge of research, offering genomic testing to all cancer
    patients who would benefit, and speeding up the adoption of new, effective tests

NHSE Cancer in the Long Term Plan

A link to the documents can be found here: NHS Long Term Plan. Cally Palmer, National Cancer Director and others involved in developing the plan talk about it in this link https://bit.ly/2sB1eGz

We are pleased that the plan has captured the feedback from our stakeholder engagement survey that we submitted to NHSE in September – thank you to all stakeholders who contributed. NHS England will now work with us to understand what needs to happen now to make the plan a reality. In collaboration with our Cancer Alliance stakeholders and in partnership with our communities, we look forward to working with our stakeholders to develop our localised plans.

Again, thank you to all our stakeholders who took the time to complete the survey within the timescale. The report from findings from our stakeholders can be read here: http://humbercoastandvale.org.uk/wp-content/uploads/2018/11/NHS-Long-TermPlan.pdf

National Cancer Team’s visit to Humber, Coast and Vale Cancer Alliance 5th February 2019

David Fitzgerald will be meeting with colleagues from across the Cancer Alliance when he visits the area on 5th February. The visit will take place at The Queens Centre, Castle Hill Hospital and will focus on our plans and vision for our Cancer Alliance. This will be a fantastic opportunity to showcase our work to date and discuss our long term plans.

62 Day Standard and Cancer Transformation Funding

62 Day Recovery Plan
In the latter part of 2018 the Cancer Alliance developed its plan to create a 62 day recovery plan which was submitted to NHS England. We are pleased that the alliance has now been allocated £783,000 which has been allocated across our Provider organisations in the Alliance to deliver a number of initiatives that will have an impact on the 62 day performance target.

NHSE continues to monitor implementation of agreed investments with each of the HCVCA providers.

Awareness and Early Diagnosis Programme

Lung Health Check Programme

Partnership working with Yorkshire Cancer Research is underway regarding development of a HCV Lung Health Check Service. A draft bid for funding is being submitted by end of January 2019 with final submission April/May 2019. Sites for the delivery of the Lung Health Check
Service are to be determined in liaison with CCGs, Public Health and Primary care. A phased approach will be planned, in partnership with the Acute Trusts.

Bowel Screening and qFIT for low risk symptomatic patients

Faecal Immunochemical Test (FIT) testing for the National Bowel Screening programme will start in April 2019 when everyone eligible for screening will be given a FIT kit. The Alliance is working closely with the Yorkshire and Humber Bowel Screening Team to assess and plan for the expected impact on current services.

FIT testing for low risk symptomatic patients continues to be rolled out to all GP practices within East Riding and Hull CCGs following the success of their local pilot. The learning from this has been shared with North and NE Lincolnshire CCGs who are planning to commence
implementation in the near future.

All Humber, Coast and Vale FIT programmes will form part of discussions at the forthcoming colorectal FIT workshop on 28 February 2019, providing the opportunity for primary and secondary care teams to meet with the Public Health Screening team to develop and plan FIT services in colorectal cancer for the future.

Cancer Champion Programme
Cancer Champion training continues to progress, with over 500 Cancer Champions now trained in awareness and early symptoms of cancer. Feedback from participants so far has been very positive and the team released their first newsletter in December 2018. Click here to read the
newsletter: https://bit.ly/2FoGTw6

The programme, funded by NHSE Transformation monies, is due to end in March. Alternative funding sources are being explored.

If you would like to know more about the Cancer Champion Programme and request training for your teams or services, please get in touch with Sophie or Emmaeryccg.cancerchampion@nhs.net

Diagnostics Consolidation Programme:

The procurement process for the radiology workflow solution is progressing and is still on track to award contract in the required timeframe. Completion of the supplier visits to the provider sites to carry out due diligence and ensure their solutions are suitable for the working environment took place in January. We are now progressing to the best and final pricing part of the procurement process. We are working up the KPIs, outputs and milestones that will be included in the contract.

In January we participated in the Yorkshire Imaging Collaboration specialist groups’ workshops and reached an agreement about how to take forward standardisation work in order to maintain collaboration, whilst maintaining our own timescales.

The pathology procurement is also on track to complete as scheduled.

An initial draft of the Board Assurance Framework has been completed and we will be circulating this shortly to identify the key risks in diagnostics both in relation to existing issues and new ones arising from the 10 year plan. This will help us prioritise the work plan and contains categories including: workforce, equipment, changes in clinical pathways or processes, capacity and demand and interdependencies.

We have commenced collection of the list of assets with diagnostics with a view to agreeing a prioritised list across the patch for replacement and repair.

An endoscopy working group is being formed and this will comprise nurses, nurse managers,
colorectal surgeons, service managers, pathology colleagues and reps from YH screening team.
The initial meeting will be held on 05 March at Goole Hospital

Treatment and Pathways Programme

To assist and support the planning and implementation of the Colorectal, Lung and Prostate Rapid Diagnostic and Assessment Pathways, stakeholder events continue to be held across each of the pathways.

Colorectal Rapid Diagnostic and Assessment Pathway
Clinical Lead: Praminthra Chitsabean (Chitz), York Teaching Hospital NHS FT
Programme Lead: John Hancock, Humber, Coast and Vale Cancer Alliance
Project Delivery: Rachel Iveson, Humber, Coast and Vale Cancer Alliance

The second Colorectal Rapid Diagnostic and Assessment Pathway stakeholder event was held on 11th December. The follow-up event was to progress the implementation of the action plans from the September stakeholder event and share learning from implementation of straight to test pilots.

The event was well attended and supported by a number of clinical and non-clinical staff from
across primary and secondary care across the Alliance.

The next Colorectal workshop, focussing on implementation of Faecal Immunochemical Test (FIT)
will be held on 28th February 2019, 8.30am – 12.30pm, The Hallmark Hotel, North Ferriby. For
further information please email us at comms.hcvcanceralliance.nhs.net

Lung Rapid Diagnostic and Assessment Pathway
Clinical Leads: Stuart Baugh, North Lincolnshire & Goole NHS Trust and: Gavin Anderson, Hull
and East Yorkshire NHS Trust
Programme Lead: John Hancock and Trish Rawnsley, Humber, Coast and Vale Cancer Alliance

Action plans have been drawn up and agreed and a further business meeting was held on 21st January to update and discuss issues affecting all organisations across the Alliance including workforce shortages and diagnostics. A further education event is being planned for the end of
April, further details to follow.

Slides from the previous event can be found here: http://humbercoastandvale.org.uk/how/bettercancer-care/workstreams/

Prostate Rapid Diagnostic and Assessment Pathway
Clinical Lead – Matt Simms, Hull & East Yorkshire NHS Trust
Programme Lead – John Hancock, Humber, Coast and Vale Cancer Alliance

Invitations to the next Prostate Rapid Diagnostic and Assessment Pathway stakeholder event have gone out. The event is being held on Friday 25th January at The Ropewalk, Barton on Humber.

Living With and Beyond Cancer programme

The Living With and Beyond Cancer programme aims to ensure that patients with cancer or who have finished treatment are enabled to live as well and healthily as possible.)

The Living With and Beyond Cancer programme was successful in bidding for transformation funding to provide the three provider trusts in the Humber, Coast and Vale Cancer Alliance area with resources for one band 7 and three band 4 posts for twelve months to support the
implementation of risk stratification and the recovery package. Most of the post holders are in place, with the remaining due to start shortly.

All three trusts are making good progress with implementing both aspects of the Living With and Beyond Cancer programme. Risk stratification is already taking place in at least one tumour site at each hospital trust, with more planned to begin early in 2019.

Work is also underway to implement the recovery package across the CCG areas in various ways, especially across the target tumour sites – breast, lung, colorectal and prostate.

The next LW&BC delivery board date is 10th February 2019. To ensure that the voice of those affected by cancer is part of the work-stream, the delivery board is recruiting two patient representatives to join the membership. For further information please contact Alison.cockerill@nhs.net

Data/Information:

A copy of the HCV cancer alliance dashboard for the period November 2017 to October 2018 is available by contacting us at comms.hcvcanceralliance@nhs.net

Communications and Engagement
The Communications and Engagement Strategy was approved at the Cancer Alliance System Board in November and a detailed implementation plan is being developed through the Communications and Engagement Steering group.

The next Communications and Engagement Steering Group is being held on Monday 28th January 2019.

Website – Humber, Coast and Vale Cancer Alliance
Following the successful funding bid to Macmillan Cancer Support, a project delivery group has been set up to oversee the implementation of a new Humber, Coast and Vale Cancer Alliance website that will link with the overall Health and Care Partnership website and programmes.
Anyone who would be willing to be involved in supporting this development or would like to comment and suggest content, please get in touch. It is planned that the website will be developed April 2019. Call out for ‘models for the new website – who are willing to be photographed and who work within our cancer services, please do get in touch. We would like people who represent our area and the services we deliver, to feature on the new website.

For further information please get in touch at comms.hcvcanceralliance@nhs.net

Patient and Public focus groups for Colorectal and Prostate cancer– 6th February 2019 –Country Park Inn, Hessle
Integral to the rapid diagnostic and assessment pathways work is to ensure that the experience (from referral, diagnosis, treatment through to living with and beyond cancer), of those affected by prostate and colorectal cancer, is understood.

Focus groups are being planned to give patients and the public, from North Yorkshire, the opportunity to take part should they not be able to travel to the event on 6th February.

The Cancer Alliance has organised two focus groups to be held on Wednesday 6th February for anyone who has been affected by Colorectal or Prostate Cancer. We would like to understand both positive and negative experiences of the current pathways, ensuring that any localised
pathway steps which add value/increase positive patient experiences are not lost when
implementing against national guidelines.

Please follow the link for further information and the flyer: https://bit.ly/2R1Wx2C

Humber, Coast and Vale Cancer Alliance Patient and Public Community Network
The Community and Engagement strategy details a number of objectives which would ensure that those affected by cancer can give feedback, feel listened to and can be involved and influence the priorities and ambition of the Cancer Alliance.

We are delighted that Macmillan Cancer Support has provided funding for the Cancer Alliance to develop a Community Patient Network. The Network is based on a similar model being delivered by the West Yorkshire and Harrogate Cancer Alliance, through Healthwatch, Wakefield. The Network aims to work to represent those affected by cancer and involve them in the design of services. Following a successful bid for funding and subsequent requirement to the role of Patient and Public Engagement Officer, to set-up the Community Patient Network, we plan for the Network to start to develop from April 2019.

Social Media – Twitter @HCVCancer
A reminder that Humber, Coast and Vale Cancer Alliance uses twitter and our handle is @HCVCancer Please do send content or tag us in to anything you would like us to share or make us aware of.

North Region Cancer Collaboration and Improvement Programme
The North Region Cancer Alliance held an event back in 2018 which identified patient and public involvement as a primary driver for Alliances. It was agreed that building capacity and capability of our cancer workforce, to enable us to deliver good engagement and ensure co-design, was a priority for the Collaboration to take forward.

This work-stream, being led by the Northern Cancer Alliance, has been developed in conjunction with the Patient and Public Engagement Leads across all seven Cancer Alliances. Funding from NHSE has been identified to prioritise supporting the Alliance PPI/engagement leads via a facilitated Action Learning Set and by building the capability and capacity across the region by delivering expert masterclasses. It is expected that this work will commence later this month and further developments will be reported as this takes shape.

Job Opportunities within the Programme Team
The Cancer Alliance currently has the following vacancies within the team. Project Delivery Manager and Project Support Assistant. For further details, please follow the respective links:
https://www.jobs.nhs.uk/xi/vacancy/?vac_ref=915405175
https://www.jobs.nhs.uk/xi/vacancy/?vac_ref=915405175

Invitation to an important e-cigarette briefing
Up to now, the evidence of the efficacy of e-cigarettes (EC) in helping smokers quit was unclear. Although a number of smokers have reported that they stopped smoking successfully with the help of EC, and there was some evidence from two early trials that cig-a-like EC with nicotine help smokers more than ‘placebo’ EC, no solid evidence of the efficacy of modern EC existed, particularly compared to the efficacy of standard nicotine replacement therapy.

A large RCT has now been completed that compared combination NRT with EC starter packs provided within specialist stop smoking services. The study funders, National Institute of Health Research/Health Technology Assessment, are sponsoring this event to assist with the dissemination of the trial results, to speed up the translation of research into practice.

The event will provide a succinct briefing for Directors of Public Health, commissioners of stopsmoking services, and other stakeholders. It will cover data on EC efficacy up to now, details of the trial results, and how these results may affect current clinical practice. Smoking cessation experts will discuss with the audience practical issues and models of practice that take the new findings into account, to facilitate a consensus on appropriate clinical and commissioning recommendations. We are also pleased to offer advanced sight of some of the findings of PHE’s latest update on the evidence of youth and adult behaviours and the first data on possible impact on smoking related social norms among youth.

To book your ticket for the London event on Thursday 7th February (12-4.30pm) click on:
https://www.eventbrite.co.uk/e/role-of-e-cigarettes-ec-in-specialist-stop-smoking-services-tickets54583703326
To book your ticket for the event in Birmingham on Monday 11th February (12.30-4pm), click on:
https://www.eventbrite.co.uk/e/role-of-e-cigarettes-ec-in-specialist-stop-smoking-services-tickets54699590949
To book your ticket for the event in York on Tuesday 12th February (12.30-4pm), click on:
https://www.eventbrite.co.uk/e/role-of-e-cigarettes-ec-in-specialist-stop-smoking-services-tickets54699724348
After registering you will receive a programme and further directions to the venue. For any general
enquiries please contact Dr Katie Myers Smith – T:0207 882 8245 or email
katie.smith@qmul.ac.uk

Please contact us if you no longer wish to receive this monthly communication, if you have received this bulletin and are not on our distribution list and would like to be, or if there is anything you would like to include in future monthly updates. Our email is comms.hcvcanceralliance@nhs.net

November 2018 Stakeholder Updates

By | Stakeholder Updates | No Comments

As part of our communications and stakeholder engagement plans, the Cancer Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments across the Alliance.

Clinical Leadership Event – Humber, Coast and Vale Cancer Alliance – 19th October 2018

Over 30 Senior Leaders, Chief Executives, Leads from Cancer Services (Primary and Secondary Care), Chief Operating Officers from across the Humber, Coast and Vale Cancer Alliance area came together at a Clinical Leadership event on 19th October.

The aim of the event was for all Cancer Alliance stakeholders to discuss and work towards, a common ambition of what stakeholders want their Cancer Alliance to do now, and in the medium to long term, to improve cancer services and outcomes for patients. The facilitated sessions identified targets and milestones for the development of the strategic delivery plan.  The event generated debate, enthusiasm and energy for future collaboration across cancer services in the area.  Key actions and areas of focus were identified and will be further developed at a follow-up event on 25th January 2019.  The event will build on the vision and aspirations that stakeholders described during the event.

62 Day Standard and Cancer Transformation Funding

As you will know, the Cancer Alliance was informed by the NHSE that we were being defunded a further £700k for not delivering the 62 day performance target in May, June and July 2018.  We were further required to provide the cancer team with our prioritised projects (excluding the 700k) by September 2018.  At an extra-ordinary meeting of the Cancer Alliance System Board the Board met to consider the options available.  All members’ views were that all of the transformation projects were critical in improving outcomes for patients and we would strive to deliver all of the projects over the coming months.  It was through necessity that the Board had to make very difficult decisions with regard to prioritising spend.

62 Day Recovery Plan

During October 2018 the Cancer Alliance developed its plan to create a 62 day recover plan which was submitted to NHS England.  We are pleased that the alliance has now been allocated £783,000 which has been allocated across our Provider organisations in the Alliance to deliver a number of initiatives that will have an impact on the 62 day performance target.

NHSE Cancer in the Long Term Plan

Cancer Alliances across the Country were asked by NHS England in August 2018, to support the development of a new plan for the next ten years.  This followed the Government’s announcement of a new financial settlement for the NHS.  This was an opportunity for us to gather a wide range of views across the Humber, Coast and Vale Cancer Alliance from our stakeholders.  These views sought to understand what our stakeholders considered to be the priorities for improving cancer care outcomes and care over the next five to ten years.

NHSE also held a workshop with patient and public representatives led by the National Cancer Director, Cally Palmer which our Cancer Alliance was able to be represented at.  This was a further opportunity for the patient voice to be included in the Long Term Plan.

Thank you to all our stakeholders who took the time to complete the survey within the short timescale.  We had an amazing response and the findings from the feedback can be read through the following link. The feedback was sent to NHS England to inform the Long Term Plan for the NHS.

http://humbercoastandvale.org.uk/wp-content/uploads/2018/11/NHS-Long-Term-Plan.pd

Awareness and Early Diagnosis Programme

Lung Health Check Programme

As mentioned previously, the Cancer Alliance System Board carried out a reprioritisation exercise at its September Board and made the decision to delay the start of the Lung Health Check (LHC) Programme until later in 2019.  Although a difficult decision to make, concerns had been expressed about the system preparedness across the Alliance to deal with the additional diagnostic work.  The team continue to work closely with Trusts across the Alliance to ensure the LHC service is included in any future plans and alternative funding sources are being explored.

Bowel Screening and qFIT for Symptomatic Patients

The business case had recommended a small amount of transformation funding be made available to support the roll out of qFIT for patients with low risk symptoms.  However, following the re-prioritisation exercise, the Board made the decision to withdraw the funding.   There has been discussion with colorectal teams at the recent pathways event who have agreed that a FIT Workshop is required to gain understanding of all 3 FIT programmes (Introduction of FIT for the bowel screening programme; qFIT for low risk symptomatic patients and research of FIT for patients with high risk symptoms) within the Alliance footprint in the near future to ensure that planning for colorectal services are fully integrated and standardised across the Alliance.    This will also present the opportunity for shared learning from the pilot recently conducted in Hull and East Riding into the roll out of qFIT.

National Cancer Alliance Early Diagnosis Conference – September 2018

Members of the Humber, Coast and Vale Cancer Alliance attended the National Cancer Alliance Early Diagnosis Event, where the keynote address was given by David Fitzgerald, Programme Director for the NHS Cancer Programme.  The event, which was held at the Etihad Stadium in Manchester, had representation from all 19 Cancer Alliances, and gave Cancer Alliances the opportunity to present and showcase their Early Diagnosis projects.

The Cancer Champion Programme is a Humber, Coast and Vale Cancer Alliance initiative developed to provide training for people to better understand the signs and symptoms of cancer.  The three hour training supports people to be able to talk about the signs and symptoms of cancer with their friends and family.

The team presented the project through a poster display and the Programme Lead delivered a presentation in the’ Improving the Health of Local Populations’ workshop.

The event generated a lot of interest in the Cancer Champion Programme, both at the event and, through social media activity.

Cancer Champion Programme

Sophie Lancaster and Emma Lewin our Volunteer Co-ordinators for the Cancer Champion Programme continue to build resources, training and stakeholder networks across the Alliance. This supports our ambition of achieving 400 cancer champions in 2018-2019.  The Volunteer Co-ordinators delivered the Cancer Champion training to a number of groups and businesses across the Alliance during October and ran two sessions to East Riding CCG staff.

Jane Hawkard, Chief Officer at East Riding CCG, who attended the CCG training, explained “getting people to understand the signs and symptoms of cancer, and encouraging people to visit their GP when they notice something different, is key to them being diagnosed sooner.  Early detection really can save lives and the Cancer Champion training is an opportunity for us all to learn more about the different types of cancer and how we can all encourage our friends and family to be more aware”.

If you would like to know more about the Cancer Champion Programme and request training for your teams or services, please get in touch with Sophie or Emma: eryccg.cancerchampion@nhs.net

Diagnostics Consolidation Programme:

Capacity and Demand modelling

A key theme to emerge from the demand and capacity work included the need for collaborative approaches to workforce planning and future locations/procurement of kit.

The capacity and demand modelling work has now been completed alongside heat maps which show where staffing and equipment resources are located across the patch.

Key messages have been shared with stakeholders including the Humber, Coast and Vale Health & Care Partnership (HCP) Executive.  The work demonstrates the need to extend the diagnostics work programme beyond the existing projects in order to address the gaps between capacity and demand and to develop a sustainable model of service. We are working with colleagues across the HCP to determine the support structure required to progress this work.

Network models

The Radiology procurement went live on 29th October 2018 and the specification, criteria and background documents have all been completed. We have been working with Yorkshire Imaging Collaborative and have now agreed to carry out an aligned procurement as this will give us the best chance of purchasing compatible systems which will enable future collaboration and will also help us to get the best responses for the market. We aim to award the contract by the end of January 2019 and to roll out the solution from April. Work to standardise practice will be taking place in parallel to the procurement process.

The procurement for the digital slide scanners for pathology and the home work stations will also commence shortly. We will be selecting kit on the basis that it enables participation in the wider YH wide digitalisation process.

Treatment and Pathways Programme

To assist and support the planning and implementation of the Colorectal, Lung and Prostate Rapid Diagnostic and Assessment Pathways, stakeholder events were held across each of the pathways.

Colorectal Rapid Diagnostic and Assessment Pathway

Clinical Lead: Chitsabean Praminthra (Chitz), York Teaching Hospital NHS FT

Programme Lead: John Hancock, Humber, Coast and Vale Cancer Alliance

Project Lead: Rachel Iveson, Humber, Coat and Vale Cancer Alliance

The Colorectal Rapid Diagnostic and Assessment Pathway stakeholder event was held on 13th September 2018. The event was well attended and supported by a number of clinical and non-clinical staff from across primary and secondary care across the Alliance.

Presentations included optimal pathway, IST pathway analyser tool by NHSI, Accelerate Co-ordinate Evaluate (ACE) case studies, benchmarking exercise key feedback, best practice within the Alliance – rollout of FIT for symptomatic patients in primary care findings of pilot across Hull and the East Riding of Yorkshire CCGs, and straight to test pilot undertaken in North Lincolnshire Hospitals Trust.  Workshops held for each of the three acute trusts to undertake action planning using benchmarking information to meet 62 day target.

A benchmarking exercise was undertaken across each acute trust to map current pathways in place against optimal pathway for all three trusts for colorectal tumour sites.

The NHS Improvement pathway analyser tool has been implemented in North Lincolnshire and Goole Hospitals Trust, York & Scarborough NHS FT, and currently being undertaken in Hull and East Yorkshire Hospitals NHS Trust.

A benchmarking exercise has been undertaken across each acute trust to map current pathways in place against optimal pathway for lung and colorectal tumour sites

Action plans were drafted during the workshop with MDT leads and cancer mangers from each of the hospital trusts agreeing the accuracy of the content following the event.

Slides from the event can be found here: http://humbercoastandvale.org.uk/how/better-cancer-care/workstreams/

A follow-up event to progress the implementation of the action plans has been arranged on 11th December, 12.30pm top 4pm, Mercure Hotel, Willerby.

Lung Rapid Diagnostic and Assessment Pathway

Clinical Leads: Stuart Baugh, North Lincolnshire & Goole NHS Trust and: Gavin Anderson, Hull and East Yorkshire NHS Trust

Programme Lead: John Hancock and Trish Rawnsley, Humber, Coast and Vale Cancer Alliance

The Lung Rapid Diagnostic and Assessment Pathway stakeholder event was held on 14th September and again, as with the Colorectal event, was attended and represented by a number of clinical and non-clinical staff from across primary and secondary care across the Alliance.  Presentations included optimal pathway, IST pathway analyser tool by NHS Improvement, Accelerate, Co-ordinate Evaluate (ACE) case studies, a benchmarking exercise key feedback, best practice from across the Alliance and the findings of the radiology audit at HEY.

Workshops were held for each of the three acute trusts to undertake action planning using benchmarking information to meet 62 day target.

A benchmarking exercise was undertaken across each acute trust to map current pathways in place against optimal pathway for all three trusts for lung tumour sites.

The NHS Improvement pathway analyser tool has been implemented in North Lincolnshire and Goole Hospitals NHS FT and York & Scarborough NHS FT, and is currently being undertaken in Hull and East Yorkshire Hospitals NHS Trust.

Action plans were drafted during the workshop with MDT leads and cancer mangers from each of the hospital trusts agreeing the accuracy of the content following the event.

Slides from the event can be found here: http://humbercoastandvale.org.uk/how/better-cancer-care/workstreams/

Prostate Rapid Diagnostic and Assessment Pathway

Clinical Lead – Matt Simms, Hull & East Yorkshire NHS Trust

Programme Lead – John Hancock, Humber, Coast and Vale Cancer Alliance

The Prostate Rapid Diagnostic and Assessment Pathway stakeholder event was held on 12th October with a smaller group of clinical staff from across the Alliance.  The event focused on agreeing a way forward for the development of a rapid pathway.  A gap analysis is currently being undertaken across all three acute trusts.

A follow-up event has been scheduled for 25th January 2019.

Slides from the event can be found here: http://humbercoastandvale.org.uk/how/better-cancer-care/workstreams/

Patient and Public Involvement Event

A patient and carer stakeholder event to inform the pathway development is being planned for early February 2019.

Living With and Beyond Cancer programme

The Living With and Beyond Cancer programme team is now in place with a Programme  Manager (Alison Cockerill) and Delivery Manager (Amina Bristow) funded by Macmillan Cancer Support now in post.

Work is underway to update the programme plan with stakeholders and patients / carers to ensure that the national targets and local ambitions can be attained.

The three hospital trusts were awarded funding through the transformation funding bid for one year for three x band four posts and one x band seven post. The purpose of these roles will be to assist with the implementation and embedding of the recovery package and risk stratification for target tumour sites.  This will pave the way for the achievement of the national ambition of every person affected by cancer being able to access recovery package by 2020. Recruitment has been underway and post-holders are now in post or recruitment has commenced across all hospital trusts.

A resource pack, to support GPs in undertaking high quality Cancer Care Reviews, (CCR) have been sent to GP practices.  The Cancer Care Review document provides guidance on how to carry out a CCR and examples of templates.

http://humbercoastandvale.org.uk/wp-content/uploads/2018/04/Humber-Coast-and-Vale-Cancer-Care-review-pack.pdf

For more information, contact Alison Cockerill, Macmillan Living With and Beyond Cancer Programme Manager – Alison.cockerill@nhs.net  tel. 07718 192254

NHS England has published ‘The Role of Allied Health Professionals in supporting people to live well with and beyond cancer’. You can access a copy here:

https://www.england.nhs.uk/wp-content/uploads/2018/10/quick-guide-ahp-cancer.pdf

Data/Information:

A copy of the HCV cancer alliance dashboard for the period September 2017 to August 2018 is available by contacting us at comms.hcvcanceralliance@nhs.net

Communications and Engagement

The draft HCV Cancer Alliance Communications and Engagement strategy was presented to the Cancer Alliance System Board at its September 2018 meeting. Stakeholders across the Alliance were invited to give feedback by 15th October on the Strategy.  The strategy will now go to the Cancer Alliance System Board 0n 12th November 2018.

The Communications and Engagement Steering group, with key stakeholders from across the Alliance area has now had its first meeting and will be responsible for overseeing the implementation of the Communications and Engagement strategy.  The Strategy and action plan will be developed to provide the detail of how we will engage and communicate with patients, public, staff and other key stakeholders.

Website – Humber, Coast and Vale Cancer Alliance

We are pleased to announce that Macmillan Cancer Support has agreed to fund the development of a Cancer Alliance website.  Procurement of a provider has commenced and a task and finish group will be set up to develop the new website.  Anyone who would be willing to be involved in supporting this development, please get in touch.

For further information please get in touch at comms.hcvcanceralliance@nhs.net

Encouraging more feedback from cancer patients from BME backgrounds

During the autumn, NHS England’s Insight & Feedback team will be working with partners to highlight the importance of hearing ALL voices in feedback about cancer services. Posters, messaging and web resources are being developed with links to a web page that sets out the different ways that people who do not identify as ‘white British’ can tell services what worked well and what could be improved, so that future patients will benefit.

More information and links to downloads will be available soon. Anyone who feels they can help to spread the word during October and November – coinciding with the distribution of the NCPES to thousands of patients across the country – are asked to contact Insight and Feedback Communications Manager, Gillian Radcliffe – gillian.radcliffe@nhs.net

National Cancer Patient Experience Survey 2017

On 28th September, NHS England published the results of the National Cancer Patient Experience survey for 2017. The annual survey, first undertaken in 2010 has been designed to monitor national progress on cancer care; to provide information to drive local quality improvements; to assist commissioners and providers of cancers care; and to inform the work of charities and stakeholder groups supporting cancer patients.

The reports for the CCGs and Hospital Trusts across the Humber, Coast and Vale Cancer Alliance can be accessed here:  https://humbercoastandvale.org.uk/how/better-cancer-care/

Other updates/events:

HSJ’s inaugural National Cancer Forum – 12th March 2019

In 2015, NHS England embarked on a five-year cancer strategy to achieve world-class cancer outcomes. Now, as one of the highest profile of NHS England’s clinical priorities, cancer will feature significantly in the NHS ten-year plan due in November.

What does this mean for you?
What is your role in making the ten-year plan a reality?
What does the future of cancer care look like?

HSJ’s inaugural National Cancer Forum will answer these questions and others at Park Plaza Victoria on 12 March 2019. This free to attend forum will bring together core stakeholders from across the cancer community – from public bodies, cancer alliances and individual trusts. REGISTER YOUR INTEREST

The programme will be available shortly, with key themes including:

Making the ten-year plan a reality

The future of the cancer workforce

The potential of AI

Genomics and personalised medicine

The vital role of primary and community care

Meaningful patient involvement

Cancer waiting time standards

This is a unique opportunity to discuss national cancer policy with peers from across England and how to deliver it at a local level.

The target audience for the event:

  • National leaders from public bodies, including NHSE, NHSI, Health Education and PHE
  • Senior representatives from Cancer Alliances
  • Project leads for cancer at STP/Integrated Care System level
  • Specialist cancer trusts
  • Consultants, clinical directors, lead oncologists, chief pharmacists, heads of radiology, lead cancer nurses, specialist cancer nurses and general manager

Please contact us if you no longer wish to receive this monthly communication, if you have received this bulletin and are not on our distribution list and would like to be, or if there is anything you would like to include in future monthly updates.  Our email is comms.hcvcanceralliance@nhs.net

Coaching/mentoring offer – for people representing patient voice in the NHS 

NHS England has developed a coaching/mentoring development opportunity for Patient and Public Voice (PPV) partners. We are offering places to PPV partners who are currently volunteering with NHS England or are supporting transformation through their volunteering with Clinical Commissioning groups (CCGs), Sustainability and Transformation Partnerships (STPs) or Integrated Care Systems (ICSs) on a regular basis. The coaching/mentoring will be provided by accredited employee coach/mentors who also coach or mentor NHS England employees.

This development opportunity is aimed at strengthening patient voice. Initially we have 20 places available. This opportunity does not attract any type of payment. Expenses incurred will be covered as per our expenses guidance and paid by the Public Participation team at NHS England; these are expected to be minimal as the majority of the sessions will be conducted by telephone/skype wherever possible.

Criteria

  • We would anticipate that you would have been volunteering for a minimum of 6 months representing patient voice (less will be considered if you feel you have had enough time in the role to have something you wish to receive coaching/mentoring on)
  • We will consider location as part of the criteria to get a spread across the country and to fit with coach/mentor availability
  • You will need to have a specific issue related to your volunteering role which you would like to work through with your coach/mentor. This should be something that will help you increase your effectiveness in representing patient voice (this will remain confidential between yourself and your coach/mentor)

More information and how to apply

If you are interested please send an e mail to england.ppve-learning@nhs.net requesting an application form and information pack for the coaching/mentoring offer. As part of your application you will be asked to include details of your sponsor and a supporting statement.  The closing date for receipt of completed application forms for this year will be 15th November 2018.

Angela Medd, Patient and Public Partnerships Account Manager

NHS England, E: angela.medd@nhs.net  M: 07876 851750

 

If you no longer wish to receive this update, please email us at comms.hcvcanceralliance@nhs.net and we will remove your contact details.

September 2018 Stakeholder Updates

By | Stakeholder Updates | No Comments

The CCG cancer improvement and assessment ratings 2017-2018 have been published by NHS England and demonstrate the scale of the challenge for our cancer services and teams across the Humber, Coast and Vale health and care system.

The assessment measures progress against national ambitions.

  • One year survival should reach at least 75% by 2020/21 for all cancers
  • At least 62% of cancers should be diagnosed at stage 1 or 2 by 2020/21

At least 85% of patients should begin their treatment within 62 days of urgent referral by a GP

  • Continuous improvement in patient experience

Whilst cancer teams across Humber, Coast and Vale are working incredibly hard to improve services, care and outcomes for people with cancer significant challenges remain, which is reflected in the ratings we received.  These challenges include: difficulties recruiting and retaining the skilled and experienced workforce that we need; challenges to meet the increasing demand for diagnostic tests and continuing inequalities in health outcomes between the most and least deprived areas in our Alliance.

Working together through the Cancer Alliance will enable us to make more rapid progress to improve cancer care. Together we are working to ensure more people are diagnosed sooner, treated more quickly and are able to live well with and beyond cancer.

The improvement and assessment rating date is available on the NHS England website or click on the following link to the assessment

https://www.england.nhs.uk/wp-content/uploads/2018/08/ccg-cancer-assessment-2017-18.pdf

An image of the Humber Bridge, taken at sunrise from below the bridge on the Hull side of the estuary. The fields behind the South Bank can be seen in the distance, on the other side of the water.

July 2018 Stakeholder Updates

By | Stakeholder Updates | No Comments

Humber, Coast and Vale Cancer Alliance

July 2018 Monthly Update

As part of our communications and stakeholder engagement plans, the Cancer Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments across the Alliance.

National Cancer Alliance Leadership Workshop – 4th June 2018 

Jane Hawkard, SRO and Rafael Cicci, Programme Director and Stuart Baugh, Clinical Lead, attended a Cancer Alliance Leadership Day on 4th June, organised by the NHS England national cancer programme team. Those presenting at the meeting were National Cancer Director, Cally Palmer; David Fitzgerald, National Cancer Programme Director, and Simon Enright, NHS England’s National Director of Communications.

Key themes of the event were the vision for Alliances as cancer system leaders, long-term ambitions for Alliances through to 2021 and also priorities for 2018/2019. Thanks were expressed to everyone across the system working hard around recovery of the 62-day cancer waiting time standard, and it was made clear that priority should continue to be given to achieving this.

Discussion sessions focused on clinical engagement; involving patients in transformation programmes, Alliance governance, public engagement and communications. West Yorkshire and Harrogate Alliance, Northern Cancer Alliance, along with London Cancer Vanguard colleagues, led a workshop sharing their good practice around communications and engagement. Humber, Coast and Vale Cancer Alliance have now met with WY&H and Northern CAs and will link closely moving forward to share best ideas and practice through peer support.

NHS Cancer Programme – Self-assessment framework for Cancer Alliances

In 2018/19 the NHS Cancer Programme aims to support alliances develop as system leaders.  To support this, the NHS Cancer Programme has developed a self-assessment framework to collect stakeholder views to inform our future development. As one of nineteen cancer alliances across England, overseen by the NHS England Cancer Programme, we have been asked to complete the self-assessment framework.

A range of criteria have been identified across five domains that have been recognised as key factors in supporting Alliances in delivering meaningful transformation at scale and pace.

This self-assessment framework will allow Cancer Alliances to reflect on their system development to date and to garner feedback from their immediate stakeholders. Through consideration of the criteria, Alliances will build a holistic view of their Alliance as a system, using this framework as a tool to draw out focus areas for future improvement.

How the information will be used and shared
Cancer Alliances will use the framework to support discussions on the key development areas for their Alliance as a system.  The self-assessment framework is not a performance management tool. The detailed returns from local stakeholders are for the Alliance to consider as they wish and we recommend follow-up discussions locally with stakeholder contributors. Summaries from the Alliances’ discussions with regions will be used to shape a national development offer, ensuring this is targeted most usefully to support Cancer Alliances strengthen as systems and deliver impactful change for cancer patients.

We are keen to derive the maximum benefit from this self-assessment and have asked a number of key stakeholders across the Alliance to complete the assessment.  Please could all feedback be sent back to comms.hcvcanceralliance@nhs.net by 11th July 2018, thank you.

National Cancer Rehabilitation Pathways

In 2013 the National Cancer Action Team at Macmillan Cancer Support worked to establish the evidence base for cancer rehabilitation and the subsequent interventions which take place at each stage. This pathway is the culmination of that work. The pathways are provided as a guide to the types of rehabilitation interventions which patients may need at different stages.

Following feedback from AHPs across the UK there were many requests that the cancer rehabilitation pathways be available and accessible to all working with those affected by cancer. We have listened to this feedback and bring you the output of phase 1 of a two-phase project. In this phase this version of the cancer rehabilitation pathways has been refreshed (from the original NCAT work described above) with the prime aim of ensuring the pathways are accessible and navigable to healthcare professionals.

Hard copies will be available very soon directly through Be.Macmillan.org

Phase 2 of the work will start in July 2018 and will aim to ensure that the pathways link to current national policy and have further content added based on emerging evidence that has developed over the last few years. Please use the following Twitter hashtag: #CancerRehab if you would like to tweet about the pathways.  The live link for the interactive pdf is:

https://www.macmillan.org.uk/assets/macmillan-cancer-rehabilitation-pathways.pdf

Please feel free to share with colleagues across the Alliance.

Cancer Accelerated Design Events – Summary WebEx

NHS Horizons and NHS England hosted a summary WebEx for delegates who attended the Genomics & the Personalisation of Cancer Care Accelerated Design Events that were held in April and May in London, Birmingham, Leeds and Bristol.

Over 100 people were able to join the session that shared the key themes and proposed 16 recommendations from across the four regional events. These recommendations will be shared with NHS England and Genomics England in the form of national, regional and local action plans so that we can continue to embed genomic analysis into routine cancer care.

If you would like to view the WebEx it has been recorded and you can view it on YouTube here. The slides from the WebEx can be found on Dropbox in this folder.  All of the presentations from the four earlier events are available to view and download on the GMC Network here.

NHS England’s Genomics Implementation Unit There will be delivering more events in the future to ensure delivery on the recommendations.

Awareness and Early Diagnosis Programme

The Awareness and Early Diagnosis Delivery Board met on 15th June.  Key discussions points included:

Gateway C

Gateway C, the Primary Care Education platform, is an on-line learning tool to support primary care clinicians in the diagnosis and management of patients.  A presentation to primary care clinicians, commissioners and other colleagues from across the Alliance, to understand and review Gateway C implementation options, potential opportunity and impact will be made on 11th July, 6.30pm to 8.30pm, Mercure Hotel, Willerby. The aim of the presentation will be to:

  • Gain an oversight of the system
  • Understand the background/content and design (by GPs and patients)
  • Look at how it will benefit primary care within HCV and improve the patient experience
  • Put into context where Gateway-C fits into the HCV Programme
  • Consider how it can support GPs and all practice staff (CPD accredited)
  • Influence how we might want to implement it
  • Discuss future of the model and funding post March 2019

If you would like more information on Gateway C or the event, please email us at comms.hcvcanceralliance.nhs.net

Lung Health Check Service

The procurement of the Lung Health Check Service with low dose CT scan is underway with ambition to commence the pilot in October 2018.  Patient and public focus groups to support the development of a social marketing campaign are currently being scoped and location of the Lung Health Check van is being determined but will be placed in a number of areas across the HCV Cancer Alliance.

Cancer Champion Programme

Sophie Lancaster and Emma Lewin our Volunteer Co-ordinators for the Cancer Champion Programme continue to build resources, training and stakeholder networks across the Alliance. This will support the ambition of achieving 400 cancer champions in 2018-2019.  The Volunteer Co-ordinators will commence the delivery of Cancer Champion training to new volunteers over the coming weeks.

Bowel Screening and qFIT: (low risk symptomatic patients)

The implementation business case has now been developed and presented to the Awareness and Early Diagnosis Board in June.  The ambition is to achieve full roll-out by January 2019.

Diagnostics Consolidation Programme:

Demand and Capacity

A key theme to emerge from the demand and capacity work included the need for collaborative approaches to workforce planning and future locations/procurement of kit.

A half day demand and capacity workshop was held on 20th June 2018 at Goole Hospital attended by professionals from across the Alliance were in attendance.  The event was chaired by Wendy Scott, Chief Operation Officer and Programme Sponsor (Diagnostics), York Teaching Hospital NHS FT.  Key messages from the workshop highlighted, not just current gaps, but future demand and capacity gaps over the next five years. Other themes to emerge from the demand and capacity work included the need for collaborative approaches to workforce planning and future locations/procurement of kit and the need to understand the future potential of technological advances such as Artificial Intelligence.

Output from the three workshop groups on the day, are being collated and will be sent out to stakeholders early July.  The Diagnostic Programme Board will discuss the outputs from the workshop, how to progress and next steps, when it meets on 24th July 2018.

Any stakeholder who has not yet had the opportunity to input in to this programme of work, who would like to, please do get in touch with Mikki Golodniski, Diagnostics Programme Lead at Michaela.golodnitski@nhs.net

Network Model Plans

As reported in June’s Monthly Update, the Alliance has worked in partnership with North West London Cancer Alliance to   carry out initial market engagement with potential suppliers as part of the pre-procurement stage of the networked model of Radiology reporting.  Further market engagement at a local level is now underway and will establish the readiness of the market and ensure expectations are realistic.  The HCV Cancer Alliance is sharing the learning and experiences from this programme of work with other Cancer Alliances with similar aspirations in order that the best possible service can be delivered across Cancer Alliances.

A national professional advisory panel with HCV representation is supporting the process and will further help to set expectations and advise on the state of the market. At this point, procurement is expected to be commence end of July/early August with a view to award a contract December 2018/January 2019.

Pathology

The procurement process for Pathology will commence September with the approach to standardisation being replicated from the radiology procurement.

Treatment and Pathways Programme

RAPID pathways for Lung, Colorectal and Prostate are significant precursors to delivering the 62 day operational performance targets.

HCV CA is establishing processes to deliver locality and HCV implementation plans which show demonstrable progress towards developing the RAPID pathways.

Lung Rapid Diagnostic and Assessment Pathway

To assist this programme, Rita Trewartha from Attain will be providing additional support to the HCV Cancer Clinical Lead for the Lung Pathway working with John Hancock, Programme Lead for the Treatment and Pathways programme and Gavin Anderson, Clinical Lead for the diagnostic and assessment part of the pathway, Hull & East Yorkshire NHS FT.

Prostate Diagnostic and Assessment Pathway

To assist this programme, Beverley Futia, from Attain will be providing additional support, working again, with John Hancock and Matt Simms, Clinical Lead, Hull & East Yorkshire NHS FT.

Colorectal Rapid Diagnostic and Assessment Pathway

John Hancock, Treatment and Pathways Programme Lead to the HCV Cancer Alliance will be leading the work on this work with Chitsabean Praminthra (Chitz), Clinical Lead.

To assist and support the planning and implementation of the Colorectal Rapid Diagnostic and Assessment Pathway across the Health and Care Partnership (formerly STP) footprint, a stakeholder event is planned for 13th September, venue and location to be confirmed.  The purpose of the event is to progress implementation of the Colorectal Rapid Diagnostic and Assessment pathways across Humber Coast and Vale in a way that supports collaborative working.

Stakeholder events for Lung and Prostate pathways are also being considered and stakeholders will be invited once timings and location have been established.

Lung and Prostate Webex

A webex is being delivered on 14 July re timed pathways for Lung and Prostate Cancer for more information comms.hcvcanceralliance@nhs.net

Data/Information:

A copy of the HCV cancer alliance dashboard for the period May 2017 to April 2018 is available by contacting us at comms.hcvcanceralliance@nhs.net

Communications and Engagement:

A HCV Cancer Alliance Communications and Engagement strategy will be developed and presented to the Cancer Alliance System Board Autumn 2018.  A Communications and Engagement Delivery group, with key stakeholders across the Alliance footprint, has been set-up to develop the strategy and supporting delivery plan.  The strategy and delivery plan will set out how we will engage and communicate with our patients, public, staff and other key stakeholders.

For further information and to be involved in the development of the strategy and future programme of work, please get in touch at comms.hcvcanceralliance@nhs.net

Other updates/events:

Support Assistant Vacancies within the Cancer Alliance

The Cancer Alliance is currently advertising for support assistants to join our Awareness and Early Diagnosis Programme and also our Treatment and Pathways Programme.  For further information, please cut and paste the link below into your web browser or access via NHS East Riding CCG on jobs.nhs.uk.  Closing date is 15th July 2018

https://www.jobs.nhs.uk/xi/vacancy/a170209d395da561cd08c295440649d0/?vac_ref=915150034

Be Clear on Cancer – Blood in Pee Campaign

The Be Clear on Cancer ‘Blood in Pee’ campaign is being re-run by Public Health England from 19th July to 23rd September 2018. The aim is to raise public awareness of visible haematuria which is a key symptom of bladder and kidney cancer – and encourage those who notice this symptom to see their GP. The campaign will particularly target men and women aged over 50 in lower social and economic backgrounds. The theme will be ‘owning the pee break’ – an ideal time at which to raise awareness of the importance of taking action.

You can find out more about the campaign and order free campaign resources – including resources for display in washrooms – from the Public Health England Campaign Resource Centre. Washroom packs can be ordered via: (https://partnerships.wufoo.com/forms/z1m7h1nu1s926cm/):

If you have a number of settings you would like to order, please email partnerships@phe.gov.uk

Yorkshire Cancer Patient Forum

The Yorkshire Cancer Patient Forum is an independent organisation representing a voice for people affected by cancer in Yorkshire and Humber.

The Forum held its AGM on 29th June in Leeds where the launch of a Community Panel funded by the West Yorkshire and Harrogate Cancer Alliance took place.  Hosted by Healthwatch Wakefield the Cancer Alliance Community Panel will bring together volunteers to form a panel from cancer survivors, carers and members of the public who have an interest in cancer services.  The panel aims to improve cancer care by working closely with the WY&H Cancer Alliance to support a broad number of work-streams including Living with and Beyond Cancer and Prevention and Early Diagnosis.  Humber, Coast and Vale Cancer Alliance has made links with the Community Panel and plans to work closely with the Panel and Cancer Alliance to establish if this model of patient and public involvement could be replicated in the HCV CA area.

10 Steps to Even Better Patient Engagement – 20th September 2018

Humber, Coast and Vale Cancer Alliance have arranged for Gillian Driscoll of the Nursing Directorate at NHS England to deliver a training session for colleagues across the area. The session will help support staff to involve patients and the public in their work in a meaningful way to improve services, including giving clear advice on the legal duty to involve. I would encourage staff to take advantage of this training session which is free to colleagues across the Alliance. For more information and to book your place, please email comms.hcvcanceralliance.nhs.net

Sage and Thyme workshop

Cancer Alliance staff are offered a free 3 hour workshop which is being run on behalf of Macmillan Cancer Support.  This course is open to professionals, volunteers, and the wider cancer workforce.

Learning Objectives:

  • A memorable structured way for getting into and out of a conversation
  • How to empower patients/carers who are worried or distressed
  • Communication skills that are evidence-based

20th July, Sheffield (9.30 – 12.30) or (13.30 – 16.30)

20th September, Leeds (13.30 – 16.30)

Yorkshire and Humber Leadership Academy – New System Change Consulting Skills Programme announced

The network of Northern Leadership Academies in the North East, North West and Yorkshire and the Humber have collaborated to offer an in-place programme for leaders tasked with transformational change within the system. This programme has been designed to challenge and support leaders to develop their confidence, skills and mindset to work in a ‘change consultant’ capacity when engaging in organisational, cross-organisation and system change transformation and programmes of work.

Senior healthcare professionals working on a transformational change project or leading/supporting a strategic, complex system change are invited to apply. Alternatively, you may be a senior OD/HR or transformation professional working in and/or supporting others with transformational change projects.

Please see further information on our website by copying the link in to your browser and submit your application by 25 July or contact Amanda Reszczysnki.

https://www.hee.nhs.uk/our-work/leadership/yorkshire-humber-leadership-academy/system-change-consulting-skills-programme

Please contact us if you no longer wish to receive this monthly communication, if you have received this bulletin and are not on our distribution list and would like to be, or if there is anything you would like to include in future monthly updates.  Our email is comms.hcvcanceralliance@nhs.net

The next monthly stakeholder communication update will be 3rd August 2018

 

Rafael Cicci

Director – Humber, Coast and Vale Cancer Alliance

 

X
Skip to content