Cancer Alliance

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Involvement Opportunities

Cancer Patient Experience Survey 2021

By | Involvement Opportunities, Living with and Beyond Cancer

NHS England and Improvement has launched its 2021 national Cancer Patient Experience Survey (CPES).

The survey asks for feedback from patients, aged 16 and over*, who were treated for cancer as an inpatient or day case, and left hospital in April, May or June 2021, to take part.

Patient feedback is crucial in helping organisations that commission and provide cancer services across Humber, Coast and Vale understand what is working well and identify areas for improvement.

The results from CPES will help to improve local cancer services by enabling Humber, Coast and Vale Cancer Alliance to identify local priorities and work with patients and partners to deliver change.

This year the Cancer Patient Experience Survey (CPES) questionnaire has been redesigned, guided by the CPES Advisory Group, to reflect developments in cancer care and treatment, and national policy. The results of the survey will be available in Summer 2022.

For more information on the survey and how to access help and support in completing it, please visit www.ncpes.co.uk

*A new survey has been launched for those aged 16 and under, www.under16cancerexperiencesurvey.co.uk.

Image shows a NHS staff member operating a CT scanner. There is a patient lying on the scanner. Text on the image reads 'Cancer Patient Experience Survey. Help us to make meaningful change in cancer services.

NHS launches new national COVID Cancer Antibody Survey

By | Involvement Opportunities | No Comments

The NHS has launched a national COVID Cancer Antibody Survey to assess antibody responses to the COVID-19 vaccines among cancer patients

People aged 18 or over, who are living in England and have either been diagnosed with cancer in the last year or are currently receiving cancer treatment, are being asked to sign up to the survey at www.covidcancersurvey.uk. Registered participants will be sent a finger-prick blood test that looks for antibodies against COVID-19 in the blood.

Vaccination is an important strategy to protect society from the effects of COVID-19, but there is emerging evidence that a small number of cancer patients may have lower levels of antibody response than the general population. The NHS don’t yet fully understand what lower levels of antibodies mean in terms of outcomes, but it may mean some people with cancer are not as protected from COVID-19.

By signing up for this survey, registered participants can help the NHS to develop their understanding of what antibody levels mean for people with cancer and help to provide the best treatment, care and support for patients, as well as finding out about the participants own antibody levels.

Participants will be asked to fill in a short form before being automatically redirected through to the NHS Test & Trace antibody test booking page where they’ll be able to book your free test. There are 10,000 places on this survey and the NHS expects to be recruiting participants for the next two to three months. To sign up to the survey, please visit https://covidcancersurvey.uk/.

Image shows a man in a blue and white checked shirt looking down at a paper. The NHS logo is in the top right hand corner and there is text on the image that says 'the national covid cancer antibody survey' http://covidcancersurvey.uk

Please note: The NHS are aware that, once a registration has been completed, participants will be directed onto the gov.uk antibody test booking service and one of the questions on that website asks to confirm a participants current employment status. Please ignore the text underneath this question, which asks participants not to continue if not working – people do qualify for an antibody test, regardless of their employment status. Simply answer this question and click ‘continue’ to book your test. The NHS are assured that the website is being updated imminently, when this message will be removed.

For more information, please use the ‘contact us’ section of the survey website: https://covidcancersurvey.uk/contact/

Experiences of Prostate Cancer shared at Cancer Alliance Focus Group

By | Involvement Opportunities | No Comments

In February, the Humber, Coast and Vale Cancer Alliance facilitated a Prostate Cancer Focus Group event to understand patient experiences from referral, diagnosis, treatment to living with and beyond prostate cancer.

By understanding both positive and negative experiences of the current prostate pathways across the Humber, Coast and Vale area, the Cancer Alliance aim to ensure that any localised pathway steps that currently add value/increase positive patient experience are not lost when implementing against national guidelines.

The Prostate Cancer Journey map provides a picture of the main feedback from the event.

To view the full feedback report, click here.

Thank you to all those who gave up their time to attend this event. If you have been affected by cancer and would like receive updates from the Humber, Coast and Vale Cancer Alliance or take part in future engagement events, please email comms.hcvcanceralliance@nhs.net

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